Is Rick better ??

I am at home, and many people think... ah, Rick is back home, so he must be better!

Unfortunately, it's not that simple, and there are still many things I can't do and it will take a long time before I can resume everyday activities that others take for granted. Although people expect you to be "better," even a simple walk can be too much to ask for at times.

It's a challenge to get through the days because every day is a waiting game to see how much energy I have and what I can or cannot do. The frustrating part is that there are still many things I'm not allowed to do, like enjoying a nice terrace on such beautiful weather. I also have to go for frequent check-ups and examinations at the Princess Máxima Center or the UMCG, which requires a lot of time and energy.

Today, on 6-6-2023, we had a conversation with the pain doctors, underwent a heart echo, and then had an IV inserted for blood samples. I also received a 2-hour micafungin infusion and, finally, a 3-hour immunoglobulin transfusion (immunoglobulins are proteins that help the body protect itself against diseases). 

The stem cell transplantation doctor also visited for a discussion about how things are going and conducted a physical examination. The day after, I usually end up sleeping most of the day because I'm exhausted from such an intense day. But today is almost over... it's time to go home again!