Dad is coming to take care of me for a week.

After 4 weeks my mother goes home, and now it's Dad's turn to be with me for a week.

We are a very close-knit family, and normally we are always together and do almost everything together. It feels very strange when suddenly you don't see your father and brother for 4 weeks. Yes, through video calls... but it's not the same, is it? And for my parents, it's also strange because in the 28 years they have been married, they have never been apart for such a long time. So I was really looking forward to seeing dad again, and then my brother.

I had a good night without pain and me and dad went outside again after a very long time.

Now slowly tapering off the opioids. I was doing a little better every day. The next day Dad and I went for a bit longer walk...

They continued reducing medication and transitioning from infusion medication to pills.

The reason for this is that, contrary to expectations, I was likely be able to go home on Friday!

For the next 6 months, I will be in a kind of corona isolation, so I will have very limited contact with people. During these 6 months, it will also be crucial to see if the bone marrow donor continues to do their job and if there is no rejection. But for now... this was good news! I will be home soon ❤️